Memories on Memorial Day A soldier’s story, a family’s grief Thank You for your sacrifice Seaman community honors local veterans with special tribute Former PES teacher dies in tragic accident All County Senior Citizens Day celebrated Parks signs with SSCC Soccer Senior Profile: Lexie Bunn Jessie Rodgers Memorial Day services set for county Truly our greatest generation Bertha Lashley Maia Swartz Jessie Rodgers Errors spell the end of Devils’ baseball season Senior Profile: Carry Hayslip Lady Hounds’ season ends with tourney loss to Paint Valley North Adams hosts Youth Volleyball Camp Time to get “Stroke Savvy” OVCTC, GE host Community Service Day 65 years in the pulpit Jamison, Richmond, Minshew conquer second race of 2017 Brushcreek season Manchester’s Cox signs with Rio basketball program Senior Profile: Andrew Weeks A dozen SHAC champions Thomas D Lute Sandra F Schwab Turning something broken into something beautiful Nowhere to run, nowhere to hide One dead, two injured in ATV accident 2017 Graduation Ceremonies West Union Alumni and Friends Educational Fund announces 2017 Scholarship Awards TAG students tour Pennsylvania Commissioners proclaim Older Americans Month Building an anti-drug culture one t-shirt at a time SECTIONAL CHAMPIONS NAES students awarded Science Camp scholarships SSCC’s Associate Degree Nursing program celebrates graduation Bauman selected to National 4-H Congress Lois Pertuset Hazel Nixon Philip L Paeltz Manchester Youth Volleyball Camp begins May 30 Jase Thatcher Figgins’ walk-off winner sends North Adams to Division III sectional finals Lady Hounds top East 10-3 in sectional opener Commissioner Pell, union reps travel to DC Forgotten experience brings back good memories for WUHS seniors Gordon Boldman Local teen injured in jeep accident BCI Investigation underway Rick Arnold Happy Mother’s Day- Do you want food? Robert Hodge Melvin Tipton Lady Dragons Basketball Camp begins May 22 Lady Devils Basketball Camp is May 30-June 1 National Day of Prayer celebrated in county NAES students enjoy day at GABP Car strikes Amish buggy near Winchester Eldon J Shoenleben Farming out life lessons to children and parents Proposed Medicaid changes could cost Adams County millions Annual ‘Redneck Run” returns to Manchester May 13 They really were the best of times West Union hosts Junior High, High School County Track Meets Figgins signs with SSCC Soccer Perfect again! Senior Profile: Caley Grooms James T Hughes Anderson signs with Rio Grande Basketball Senior Profile: Miranda Schiltz Playing for Dad, Part II Lady Indians win SHAC Big School title Danny Bryant Sadie Stamm Franklin E Brayfield Softball, baseball tourney match ups announced Traveling Vietnam Memorial Wall coming to Georgetown next week Southern Ohio Genealogical Society offers program on ‘Family History Sources at the Ohio History Center’ Joseph A Johnson Jr Kramer tosses two shutouts in five days Trip to Akron = two more wins for Lady Indians softball Devils blank Dragons in non-conference battle Meade twins part of Rio baseball program Playing for Dad Senior Profile: Madison Welch As Mr. Seas It, for ACOVSD High School graduates We stayed up all night with Bob Clean up of Manchester’s abandoned gas stations continues Ribbon cutting held for canoe/kayak access sites Columbus Industries donates driveway repair to Animal Shelter North Adams Elementary recognizes March Students of the Month Animal Shelter Adoption Center announces new hours of operation Major road construction planned for summer months West Union Elementary honors March Students of the Month Charles D Jordan Betty Ginn Pamela M Hampton Former county sheriff celebrates 80th birthday

Disabilities: Parents give Kiki their best

The day Chiara (Kiki) Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Robertses learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At 9, and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

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By Daniel J. Vance MS, LPCC

Contributing Columnist

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