Marvin Setty Richard G Waldron Grand Marshals selected for West Union Fourth of July Parade Adams County, Maysville Vet team up to save injured dog Michael S Knauff Victor P Price Success builds from the bottom up Finalists named for 2017 Fair Queen Contest William Glenn DeWine, Reader Call For Tips in Rhoden Murder Investigation MHS principal to take superintendent post Peebles Skate Park now a reality 2017-18 Fur and Feather Ambassadors named Caley Grooms is Cattlemen’s Beef Ambassador Dr. Mueller leaving Health Department’s free clinic Hourglass Quilt Barn returning to Adams County Lung, Thornburg are First Team All-District selections North Adams hosts annual Boys Basketball Camps Walk-off winner Wanda Hill George D Johnson Life can be a juggling act My favorite thing to do on the farm Wolves in Adams County! Ronald L Wedmore Three lessons from Dad Donald D Morgan Wenstrup uninjured in Virginia shooting Portman staff to hold grant funding workshop Raymond E Applegate Keeping the Peebles tradition alive Back on the hardwood, local hoops squads compete in Monday Night League Seven county athletes recognized as All-SHAC Baseball honorees Stepping to the podium Lady Hounds host Youth Volleyball Camp Senior Profile: Bryan Young Junior Deputy Boot Camps kick off in Manchester Hayes pleads “not guilty” to 109 counts Six-year-old girl finds long-lost class ring Jefferson Alumni awards annual scholarships Paul Tate Jr Marcus I Cox Jewell Gill James M Hill Jr Jeffrey S Jones Samuel A Disher Jack Sterling BREAKING NEWS: Parents face charges after son overdoses on opiate License Hikes and Tall Turkey Tales Danger under every rock Reigning Miss Ohio USA will judge 2017 Adams County Fair Queen Pageant Gordley’s hoops career will continue at Mount St. Joseph Russell C Newman Kenneth C Thurman George Uebel Summer Reading Program underway Honor Flight carries local veteran to DC When rescuers become victims Passing the torch, West Union hosts week-long basketball camp for future Dragons SENIOR PROFILE: Sara Knechtly Terry L Powell Willie Shreffler James C Fitzpatrick Senior Profile: Austin Parks Six countians named to All-SHAC Softball squad Lady Indians get summer camp season underway Memorial Day services pay tribute to local veterans WUHS Steel Band will perform at Bogart’s SSCC announces Honors Lists for spring semester Peebles Elementary releases Honor Roll for final nine weeks West Union Elementary announces Honor Roll for fourth nine weeks Back to State! Mom calls daughter “living proof” seat belts save lives Rent-2-Own donation means new soccer scoreboard at WUHS NAHS student selected for Engineering Summer Camp Southern Hills Athletic Conferences honors Spring Sports athletes Senior Profile: Kailyn Boyd Madison Welch receives Riffle Scholarship Junior Achievement Volunteers visit county’s seventh graders Marcella J Abbott James Ratliff Gladys Davitz Harry G Shupert Memories on Memorial Day A soldier’s story, a family’s grief Thank You for your sacrifice Seaman community honors local veterans with special tribute Former PES teacher dies in tragic accident All County Senior Citizens Day celebrated Parks signs with SSCC Soccer Senior Profile: Lexie Bunn Jessie Rodgers Memorial Day services set for county Truly our greatest generation Bertha Lashley Maia Swartz Jessie Rodgers Errors spell the end of Devils’ baseball season Senior Profile: Carry Hayslip Lady Hounds’ season ends with tourney loss to Paint Valley

Disabilities: Parents give Kiki their best

The day Chiara (Kiki) Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Robertses learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At 9, and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

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By Daniel J. Vance MS, LPCC

Contributing Columnist

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