Junior Fair BBQ again a big success Beulah B James Senior Profile: Josie Myers Lady Indians place second at Ohio Classic in Hillsboro MVCA dominates Greyhounds in 45-0 triumph For Lady Devils, SHAC streak goes to 55 matches 9/11: Sixteen years later Gertrude Gibson Defender Bowl coming Sept. 16 Joyce A Walker Virginia R Young Senior Profile: Abby Campton West Union hosts 2017 Dragon Run New gridiron history begins for Peebles Trout, fire, and blueberry fields forever Senior Profile: Baylee Justice Lady Devils win SHAC thriller at Eastern Brown From Blue Creek to the Beaneaters Tough loss for Greyhounds in season opener Turning tragedy into hope What we learn from failure Absolutely had to get the wrinkles out Frances S Kidder Leo Trotter 41st Bentonville Festival set to begin Sept. 8 Winchester celebrates its history during three-day street fair Cruisefest returning to streets of Peebles Blue Creek- a community in transition honors its history and heritage Cuteness Galore – Winchester Homecoming Festival Baby Show Ronnie L Day Cast your vote for the Adams County Fairgrounds Nelson E Atkinson Ryan L Colvin Richard Tackett William L Tadlock Penny Pollard Wendell Beasley West Union soccer drops pair at Mason County Lady Indians go down in straight sets Senior Profile: Michael Gill Senior Profile: Katie Sandlin Royals dominate in big win over North Adams Dragons continue County Cup domination Archaeology Day returns to Serpent Mound Hourglass Quilt Square is back up again Manchester family hosts International Guests History, farming, and family- the bedrock of Cherry Fork’s community Bus drivers, emergency responders prepare for coming school year Working up a real good sweat What’s behind the motive? Rondal R Bailey Jr Thelma J Yates She’s all grown up now Scott A Yeager Soccer talent on display at 2017 SHAC preview Baseball community mourns the loss of Gene Bennett Winchester Homecoming Festival is Aug 25-27 Eleanor P Tumbleson Felicity man killed in Ohio River boating accident WUHS golfers take Portsmouth Invitational It was pretty cold that day Volleyball kicks off with SHAC Preview Night Young awarded Women’s Western Golf Foundation Scholarship One Mistake Senator Portman visits GE Test Facility in Peebles Adams County school districts facing some major challenges for the coming year Family, friends, and roots: the ties that bind residents of one Adams County village What is your strength? Just the chance to take a look back Ronnie L Wolford Dale J Marshall Herbert Purvis Great American Solar Eclipse coming Aug. 21 BREAKING NEWS: West Union wins fifth consecutive County Cup Wallace B Boden John L Fletcher Lady Indians golfers learning the links North Adams, West Union golfers open 2017 seasons This Labor Day, ‘Drive Sober or Get Pulled Over’ Blanton announces candicacy for Court of Appeals Local student attends Congress of Future Medical Leaders MHS welcomes new principal Made in America When it feels like you’re spinning plates Bonfires and “building” a farm Lady Devils looking to take that next step 50 years of Bengal memories Ag Society delivers donation to Dragonfly Foundation Young Memorial Scholarship awarded to a pair of local seniors ‘Musical passion is in his blood’ Naylor named NAHS Principal Boldman retiring after 17 years as Homeless Shelter director Manchester concludes another River Days celebration Drug Treatment vs. Prison James R Brown Bobby Lawler Jr Adams County man charged with killing estranged girlfriend Lexie N Hopkins Volleyball, soccer previews coming this weekend Michael A Cheek

Disabilities: Parents give Kiki their best

The day Chiara (Kiki) Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Robertses learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At 9, and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

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By Daniel J. Vance MS, LPCC

Contributing Columnist

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