Lady Indians go down in straight sets to Valley in sectional play Manchester hosts the inaugural Southern Ohio Cheer Challenge NAHS girls claim soccer sectional title Seas siblings are SHAC Cross-Country champions Lady Devils will collect fourth consecutive SHAC gold ball trophy Lady Hounds ousted in sectional tourney opener Peebles Lions Club holding Thanksgiving fund raiser FFA Fruit sales have begun, run until Nov. 18 Historical marker is repaired PES will present ‘Beauty and the Beast’ Eagle Creek Health and Rehabilitation Center Open House showcases new unit PES teacher honored by ACOVSD Board Friends of North Adams Library dedicate new brick Veterans Memorial Senior Profile: Landon Wright Geneva E Vogler Susan L Kremin Local golf teams complete play at state tournament Lady Dragons make school history with tournament win Browning gets hands-on look at NASA’s latest robotics Local beautician celebrates 80th birthday Health Department appeals to November voters Betty R Toller Senior Profile: Craig Horton Helen F Hoffer Super Saturday at Freedom Field Lady Dragons hang on for five-set victory over Manchester Seventh Grade Lady Hounds are SHAC Tournament champions Peebles Elementary announces September Students of the Month Rideout’s Muffler celebrating 40th anniversary this month Senior Citizens levy will appear on November ballot Bonnie J Orr Dorothy M Edenfield Senior Profile: Grace Barge Jerry Paquette Dragons get big 38-20 win at Green Manchester takes varsity team titles at West Union Invitational Lady Devils knock off Peebles on Volley For the Cure Night Manhunt ends with arrest of alleged bank robber Senior Profile: Kelsey Friend Lady Dragons finish as District Runners-Up Sectional pairings announced for volleyball and soccer 2 and 3 and worried is me Patricia Clift Adams County Humane Agent saves abandoned dogs and puppies Tourism had major economic impact on Adams County in 2015 Senator Portman brings his campaign to Adams County Betty E Lawson Sanborn NAHS holds National Honor Society induction ceremonies Harlan W Benjamin Joyce A Lafferty Senior Profile: Lee Hesler Dragons get SHAC win, 2-1 over Fairfield North Adams tops Peebles in ‘Kickin Cancer’ battles Double duty coming at Boys’ State Golf Tournament as West Union and North Adams both qualify Humane Society providing ‘Straws For Paws’ North Adams Elementary honors students and staff Russell Rockwell Julie L Wagner Hobert C Robinson Samuel D McClellan Brenda S Bare Clarencce Walker Jr Dolly M Hilterbrandt Jack Roush Day returns to Manchester West Union FFA has busy opening to school year ODOT opens new full-service Maintenance Facility Peebles Elementary introduces Peer Mentoring program Frost is recipient of Morgan Memorial Scholarship Peebles Fire Department has a new addition Heritage Days return to Tranquility Wheat Ridge Olde Thyme Herb Fair and Harvest Festival begins Friday Caraway Farm hosts annual Pumpkin Festival ‘Run Gio’ makes a visit to Adams County Senior Profile: Mackenzie Smith West Union, North Adams grab top two spots in Division III golf sectional tournament This memory will live with me forever Will M Stern West Union and North Adams-State Bound! Lillian N Smith Betty R Shelton Barbara ER Bohl Brenda Farley Senior Profile: Caitlyn Bradford Dragons roar to 40-0 Homecoming victory Greyhounds take three of four races at annual Adams County Meet Monarch Meadows holds grand opening Discovering a touch of glass on Erie’s Shores Junior L Conaway William B Brumley Sr Fred G Davis Ohio Valley FFA Officers for 2016-17 named ACRMC Emergency Care Center renamed after Dr. Bruce Ashley West Union holds football Homecoming festivities First graders pick the Sheriff Cross honored by ODNR with the prestigious Cardinal Award Renowned Ohio artist visits WUHS Don and Venita Bowles named 2016 Outstanding Fair Supporters PES students part of new Lego League Ferno donates $2,500 to OVCTC From the cistern to the city water

Disabilities: Parents give Kiki their best

The day Chiara (Kiki) Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Robertses learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At 9, and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

By Daniel J. Vance MS, LPCC

Contributing Columnist

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