Manchester grad enjoys a “Super” Experience Taking Adams County patriotism to the state capitol John P Sininger Jo Ann Hayslip Harvey U Schrock Eunice G. Burgess Senior Profile: Kaulen St Michael Cox Racing returns to Brushcreek on April 2 Southern Hills Athletic Conference holds Winter Sports Awards ceremony Adams County provides multiple walking venues Adams County parks are tobacco-free Rhoads Memorial 5K Run/Walk is April 9 Peebles Elem. Staff of the Month Floyd E Maddy Raymond A Holt Derrick Poe Spencer E McFarland Mintie F Rogers Roberta Eylar Big Time Wrestling coming to NAHS Carl Tomlin CTC students help with storm clean-up Opening the door for high-tech jobs Jack R Slyger Thomas Stratton Jr Eastern Lady Warriors headed to Final Four Senior Profile: Logan Rogers Southern Hills Athletic Conference names 2016-17 All-Conference Basketball Teams Winchester PD continues assault on drugs Alonso joins Defender staff Sheriff to set up outpost in Manchester Johnson named OEDA Membership Chairperson Sherman E Young Ruth Jackman ‘Kitten Season’ comes to Ohio Manchester Council votes to disband PD Olde Wayside Inn under new management Two overdose on heroin Senior Profile: Ethan Parrett Adams/Brown Youth League holds postseason tourney Three nights of pain Furious rally falls short, Lady Devils again eliminated in Div. III district finals, 45-42 Oscar Moore Barbara J Finnegan Ohio Senate and House honor Miss Ohio USA Michael Eldridge Frances Towner Thelma R Williamson BREAKING NEWS: Manchester council votes to eliminate police department Before all dogs go to heaven Adaptive Bikes delivered in Adams County Adams County Junior Fair Market Hog Identification plans announced for 2017 Local couple takes ownership of two local businesses Jo Hanson to retire after nearly 50 years in banking Sierra Club, hero or villain? Greyhounds, Devils are runners-up in SHAC Tournaments Harold L Purdin Senior Profile: Jacob Wickerham 98-year old author publishes first book Early March storm packs destructive punch Jeeps rally in second half to end the Peebles season How about some post season awards? Thanks for all the great sports coverage PHS Principal hopes to expand students’ world view When spring becomes a promise Greg Lorenz Clay shoots the lights out, shoots down Greyhounds’ season Senior Profile: Savannah McFarland Devils put up a good fight, but fall to Portsmouth in sectional final, 50-43 Second half comeback sends Lady Devils to district finals for third straight year Butts honored by Southeast District Athletic Board North Adams Elementary holds Random Acts of Kindness Week Chester W Eyre BREAKING NEWS: March makes its entrance with force WUES kicks off Right to Read Week with guest readers WUHS students see Aronoff show on the life of Edgar Allan Poe Local high school seniors winners of Wendy’s Heisman Awards The emotions of a senior year Market Hog Clinic scheduled for March 4 Venture Hawks fall to Scioto County Senior Profile : Colton Thornburg Lady Dragons’ season ends with sectional loss to Lynchburg Devils advance in tourney with convincing win over West Union, will face Portsmouth for sectional title Wenstrup selected as Vice Chairman of House Armed Services Military Personnel Subcommittee Adams County 4-H Shooting Sports to hold fund raiser Linda M Howland Nellie B Hayslip Russell E Bailey Gladys M Perdue Commissioners meet in Columbus with DP&L CEO Tom Raga Missing the Dirtrollers The farms that aren’t forgotten Flora Hilderbran Commissioners to meet with DP&L officials New state graduation requirements called a ‘train wreck’ Catching up with Keller Senior Profile: Justin Knechtly Piketon size is too much for Lady Indians, Peebles falls in sectional finals Greyhounds grab Senior Night win Indians finish regular season riding six-game winning streak

Disabilities: Parents give Kiki their best

The day Chiara (Kiki) Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Robertses learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At 9, and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

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By Daniel J. Vance MS, LPCC

Contributing Columnist

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