Ohio’s Traditional Deer-Gun Hunting Season begins Nov. 27 WWII veteran honored in banner raising ceremony Veteran of three wars honored for volunteer work Charlotte Evans Jason A Barr Why we celebrate Manchester man killed in single-car accident Adams County Election Results – 2017 Hubert Knauff To keep or not to keep Time again for the changing of the seasons November proclaimed as Adoption Recognition and Recruitment Month Local business is seven decades old and counting Local student gets Nashville call Senior Profile: Gabe Grooms Lady Indians fall in districts Quest For The Cup complete for Dragons Meeting a true sports hero WU’s McCarty named District Player of the Year With regional run, Pennywitt completes memorable career West Union eighth grade volleyball finishes as SHAC runner-up Senior Profile: Tray Brand Greyhounds drop home finale, finish at 4-6 Lady Devils fall in district semis Devils go down in district finals Matt Seas headed back to State XC Meet Senior Profile: Charlee Louden Lady Indians ousted in sectional final Lady Devils down Minford 4-1 in district semis North Adams volleyball claims fourth consecutive sectional crown Senior Profile: Brooklyn Howlett Afterschool fun begins at NAES Wearing it pink in October Kenneth L Austin Jay E Minnich Reuben E Hershberger Bobby L Williams 18 years just isn’t long enough Emotional, historic, and victorious Taking action against addiction Utilities commission approves DP&L electric security plan What matters and what doesn’t Oh dear, is that a deer? Junior Gaffin Charlotte J Thatcher Matthew D Miller Megan R Phillips Ralph M Swearingen Linda C Ackley Robert Ralston Shelly Seaman Increased access to treatment, Improving economic opportunity keys to combating Ohio’s Opioid Crisis Seas siblings are again SHAC Cross-Country Champions Lady Hounds cruise to sectional victory Senior Profile: Alyssa Hoskins 101 and another sectional championship Lady Indians claim sectional title North Adams tops Peebles for sectional soccer crown Senior Profile: Shay Boldman 13.5 seconds, heartbreak for West Union PHS JV Volleyball completes unbeaten season On the course that Nicklaus helped design On the ballot: Meigs Township Trustees West Union Christian Church will again be collection center for Operation Christmas Child Peebles voters will choose council members in upcoming election Seven candidates seek seats on ACOVSD school board A time for transformation What will future generations say? Finding all those treasures Janet K Campbell Robert D Hill Lady Devils blank West Union 7-0 in SHAC soccer finale Vikings invade and conquer the Greyhounds Outpouring of community support for local business woman with cancer Manchester mourns teen killed in single-car crash Kylie S Lucas Sharon R Grooms Steven L Wootten Forest J McDaniel Ralph O Grooms Adams County teenager dies in auto accident Charles N Vance Wesley M Baldwin James Kennedy Tom A Mihalovich Brand hat trick leads North Adams past West Union 5-2 in SHAC soccer action Senior Profile: Bryant Lung Lady Hounds pull off thrilling Senior Night win Volleyball milestones continue to pile up at North Adams Banner season for Lady Indians soccer SHAC holds Junior High Volleyball Tournament Tournament match ups set for volleyball and soccer Senior Profile: Morgan Edmisten Hounds dominate, improve to 3-4 Is this not the best time of the year? Volley For The Cure is another big success Getting everything we ask for Oh, that dreaded leaf project Manchester: Adams County’s oldest community looks to the future with hope Congressman visits Manchester’s newest business

Disabilities: Parents give Kiki their best

The day Chiara (Kiki) Roberts was born, her physician most certainly didn’t win any awards for tact or compassion.

In a telephone interview, Kiki’s father Brian Roberts said, “Kiki had skin tags on the side of her face, abnormalities of the cranio-facial region, low set ears, and a small nose and lower jaw. They rushed her out right away and after a while the doctor returned without her, saying, ‘Your daughter is going to be disabled and probably a vegetable the rest of her life. We think she has Goldenhar syndrome.’ The doctor turned and walked out. My wife and I were flabbergasted.”

Four years later, the Robertses learned Kiki had Emanuel (instead of Goldenhar) syndrome, which affects worldwide perhaps a hundred people. According to the National Institutes of Health, the syndrome is a chromosomal disorder disrupting normal development and affecting many parts of the body. Roberts said doctors described the syndrome as a lifelong “severe physical and mental disability.”

At 9, and now living in Minnesota with family, Kiki has been doing well. Said 41-year-old Roberts of his daughter, “She’s super funny and loves to interact with people. She can’t interact verbally, though. She has a really sweet spirit and can be comical in what she does. She is definitely developing a personality. You can tell when she’s not happy, for example.”

She enjoys school, interacting with peers, and learning to walk. To get around, Kiki presently uses a wheelchair pushed by others. Roberts said kids and adults often seem scared and don’t know how to interact with her.

Though an ordained Southern Baptist pastor, Roberts hasn’t been serving any particular congregation of late. He’s employed in private industry.

While explaining what happened to his daughter from the standpoint of his faith, he said, “Kiki is my child and God blessed me with her. I wouldn’t want her any other way than what she is now and I don’t think God wants her to be any other way. People say they will pray for her healing—we hear that a lot—and my wife and I appreciate those prayers and know God can answer them. If in the future God chooses to heal her and make her ‘normal’, that would be good, too. But for now we are striving to give her the best life we can, just like we do with our other child (a 15-year-old boy).”

Facebook: Disabilities by Daniel J. Vance. [Sponsored by Blue Valley Sod and Palmer Bus Service.]

http://www.peoplesdefender.com/wp-content/uploads/2015/09/web1_VanceDaniel.jpg

By Daniel J. Vance MS, LPCC

Contributing Columnist

Leave a Reply

Your email address will not be published. Required fields are marked *

© The People's Defender - All rights reserved